Our Life with B
B has lived with us for a little over a year.
Ya'll. It's been a roller coaster.
There is nothing about life that looks the way it did before.
There is nothing about life that feels the way it did before.
We are suddenly parents to a teen. Teenagers are hard. Autism is hard. Kabuki syndrome is hard. Mood disorders are hard.
But we are making it.
We have finally settled down as far as appointments go. And thankfully, my family is able to help get her to some appointments, like speech, when our jobs keep us from being able to go.
We still struggle with some of her behaviors and knowing the best way to handle them. We have seen an improvement but we still have a long way to go as a family. We, as parents, have a lot to learn. And in turn, we have a lot to teach B.
We are still learning about services that may be available for her. And then we have to decide what services may benefit her the most, that will fit in the time that we have. She can only handle so much and we can only handle so much. There comes a time where we all become physically and emotionally drained.
I would appreciate any tips for services/activities/camps in the comments, or any books that you would suggest to read.
Some things I have found helpful, and I hope to share more in a blog post:
1-Family and Friends- Just being able to call/text/go on a walk/drink a cup of coffee with. They have always been able to listen..
2- Spending just a few moments alone- taking a walk around the block, sitting on the back porch at night with a cup of coffee, or getting out of the house to run an errand. Just feeling like I have even just a few moments to myself makes a huge difference in my mood and attitude.
3- Self care- when I choose to take care of myself--eating good foods, drinking more water, getting fresh air, taking a walk, or doing some stretching, I feel better. When I feel better, I am a better parent.
4-Prayer and just sitting in silence- It doesn't have to be a long time. but sometimes turning all the noise off and just siting. It can be in my car on the way home from work. Sometimes its while I am doing dishes. I also pray. A lot. I can pray while I doing just about anything else. I can not emphasize this enough-- I would not have made it through without it. At all.
What are your coping mechanisms? I would love to hear them. Please leave them in the comments below.
My hope for this is blog, and connected instagram, is that it will encourage someone who may be going through these same situations. Please feel free to leave comments below and see my instagram @tracyrandrews
I look forward to hearing from you and sharing with you!
~ Tracy
Ya'll. It's been a roller coaster.
There is nothing about life that looks the way it did before.
There is nothing about life that feels the way it did before.
We are suddenly parents to a teen. Teenagers are hard. Autism is hard. Kabuki syndrome is hard. Mood disorders are hard.
But we are making it.
We have finally settled down as far as appointments go. And thankfully, my family is able to help get her to some appointments, like speech, when our jobs keep us from being able to go.
We still struggle with some of her behaviors and knowing the best way to handle them. We have seen an improvement but we still have a long way to go as a family. We, as parents, have a lot to learn. And in turn, we have a lot to teach B.
We are still learning about services that may be available for her. And then we have to decide what services may benefit her the most, that will fit in the time that we have. She can only handle so much and we can only handle so much. There comes a time where we all become physically and emotionally drained.
I would appreciate any tips for services/activities/camps in the comments, or any books that you would suggest to read.
Some things I have found helpful, and I hope to share more in a blog post:
1-Family and Friends- Just being able to call/text/go on a walk/drink a cup of coffee with. They have always been able to listen..
2- Spending just a few moments alone- taking a walk around the block, sitting on the back porch at night with a cup of coffee, or getting out of the house to run an errand. Just feeling like I have even just a few moments to myself makes a huge difference in my mood and attitude.
3- Self care- when I choose to take care of myself--eating good foods, drinking more water, getting fresh air, taking a walk, or doing some stretching, I feel better. When I feel better, I am a better parent.
4-Prayer and just sitting in silence- It doesn't have to be a long time. but sometimes turning all the noise off and just siting. It can be in my car on the way home from work. Sometimes its while I am doing dishes. I also pray. A lot. I can pray while I doing just about anything else. I can not emphasize this enough-- I would not have made it through without it. At all.
What are your coping mechanisms? I would love to hear them. Please leave them in the comments below.
My hope for this is blog, and connected instagram, is that it will encourage someone who may be going through these same situations. Please feel free to leave comments below and see my instagram @tracyrandrews
I look forward to hearing from you and sharing with you!
~ Tracy
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