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Showing posts from 2020

Our Life with B

B has lived with us for a little over a year. Ya'll. It's been a roller coaster. There is nothing about life that looks the way it did before. There is nothing about life that feels the way it did before. We are suddenly parents to a teen. Teenagers are hard. Autism is hard. Kabuki syndrome is hard. Mood disorders are hard. But we are making it. We have finally settled down as far as appointments go. And thankfully, my family is able to help get her to some appointments, like speech, when our jobs keep us from being able to go. We still struggle with some of her behaviors and knowing the best way to handle them. We have seen an improvement but we still have a long way to go as a family. We, as parents, have a lot to learn. And in turn, we have a lot to teach B. We are still learning about services that may be available for her. And then we have to decide what services may benefit her the most, that will fit in the time that we have. She can only handle so much a